| Organización /
Institución |
Idioma(s) |
País |
Teléfono / Fax / Correo electrónico |
Dirección postal |
Fundación Colombiana de Hipertensión Pulmonar -FCHP-
Colombian Pulmonary Hypertension Foundation -CPHF- |
Español
English |
Colombia |
1-8000-
Fax: +57 (4) 416-3548
VoIP: +57-(4) 247-5678
Celular: 317-617-3877
USA: +1-602-334-4845
fchp@hipertension-pulmonar.org
www.hipertension-pulmonar.org |
Calle 32 F 76 - 113
Medellín
Colombia |
The Pulmonary Hypertension Society of Canada
-PHSC- |
English
Française |
Canada |
Phone: 519-966-7359
Fax: 519-966-7340
PHS@mnsi.net
www.phscanada.com |
Suite 202-2510 Ouellette Avenue
Windsor, Ontario
N8X 1L4
Canada |
British Columbia Pulmonary Hypertension Society (BCPHS) |
Inglés
Francés |
Canadá |
lgmccall@shaw.ca
www.bcphs.org |
|
The Lung Centre |
|
Canadá |
Phone: 604-875-4122
Fax: 604-875-4695
http://www.vch.ca/lung/ |
7th Floor 2775 Laurel Street
Vancouver, BC
V5Z 1M9
Canada |
British Columbia Lung Association |
|
|
604.731.LUNG (5864)
1.800.665.LUNG (5864)
Outside the Lower Mainland
F 604.731.5810
info@bc.lung.ca |
2675 Oak Street
Vancouver, BC
V6H 2K2
Canada |
Pacific Lung Health Center |
|
|
Tel: 604 806 8818
Fax: 604 806 8839
www.pacificlung.com
info@pacificlung.com
|
St Paul's Hospital
8B Providence Wing
1081 Burrard Street
Vancouver, BC, V6Z 1Y6 |
Dynamic Choices Family Wellness Ltd. |
|
|
Tel:1 604 263 4191
Toll Free: 1 800 929 4191 (in North America)
margaret@dynamicchoices.ca |
|
Manitoba Pulmonary Hypertension Support Group |
|
|
Diane McGuire - (204) 728-0361
dlmcguire@mts.net
Dareth Hawes - (204) 895-0521
dareth@mts.net
mb_ph_group@yahoo.ca
http://ca.geocities.com/mb_ph_group/ |
|
| Alberta |
|
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Sharon Proudfoot - (403)701-8779
sharonproudfoot@yahoo.com
|
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New Brunswick Pulmonary Hypertension Society |
|
|
(506) 832-7618
www.nbphs.org
jgendron@nb.sympatico.ca |
P.O. Box 1332
Hampton, NB
E5N 8H3
Canada |
Living with Pulmonary Hypertension
|
|
|
www.livingwithph.ca |
|
Canadian Organization for Rare Disorders |
|
|
Phone: (416) 969-7464
Toll Free: (877) 302-7273 |
National Office: 151 Bloor Street West, Suite 600 Toronto, Ontario
M5S 1S4
Canada |
PH Central |
|
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info@phcentral.org |
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Pulmonary Hyertension Association |
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Office: 301-565-3004
Fax: 301-565-3994
Toll Free Helpline:
1-800-748-7274 |
801 Roeder Rd. Ste 400
Silver Spring, MD 20910 |
 |
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Inserm SC 11
102 rue Didot 75014
Paris
France |
 |
|
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info@pah-info.com |
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Fundacion de Apoyo para la Hipertension Pulmonar del Sureste, AC (FAHIP) |
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United Kingdom |
|
UK |
Patient helpline: 0800 3898 156
Office enquiries: phone/ fax:
01709 761450
www.pha-uk.com
enquiries@pha-uk.com |
The Brampton Centre,
Brampton Road
Wath Upon Dearne
South Yorkshire
S63 6BB |
Pulmonary Hypertension Association Europe |
|
Vienna Austria |
Tel.: +43 (0)1 402 37 25
Fax: +43 (0) 1 409 35 28
www.phaeurope.org
info@phaeurope.org |
PHA EUROPE
Wilhelmstraße 19 | 1120 Vienna
ZVR-Zahl: 070826881
Vienna Austria |
International Registry of Primary Pulmonary Hypertension - IRPPH. |
|
|
irpph@cineca.it
derosa@cineca.it
rinieri@cineca.it
irpph.cineca.it
|
|
PPH Cure Foundation |
|
|
webmaster@pphcure.org |
|
Pulmonale hypertonie e.v |
|
Germany |
Phone: ++49 (0)7242 / 95 26 66
Fax: ++49 (0)7242 / 95 26 67 |
Bruno Kopp
Wormser Str. 20
76287 Rheinstetten
Germany |
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Lungen Hochdruck Pulmonaile hypertonie |
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PPH Selbsthilfegruppe Schweiz |
|
|
www.lungenhochdruck.ch/php/index.php
webmaster@lungenhochdruck.ch |
|
 |
|
|
Tel: 030 6569631
Fax: 030 2948503
www.pha-nl.nl
info@pha-nl.nl |
Bezoekadres:
Stationsweg 16
3981 AC Bunnik
Postadres:
Postbus 4
3980 CA Bunnik |
Associazione Malati di Ipertensione Polmonare -L’AMIP- |
|
Italy |
Tel/Fax +39 06 33250970
Cell. +39 338 2806430 attivo 24/24 h.
www.assoamip.net
amip.onlus@yahoo.it |
74597048 A.M.I.P. O.N.L.U.S.
Via Bagnoregio, 51 - 00189
Roma |
PHA - Japan |
|
Japan |
Tel/Fax: 050-1031-3706
www.pha-japan.ne.jp/
m-yukiko@cf6.so-net.ne.jp |
|
National
Registry for Familial Primary Pulmonary Hypertension |
|
|
+1-800-288-0378
Fax: +1-615-343-7587
lisa.wheeler@vanderbilt.edu |
James Loyd, M. D., Director
Lisa Wheeler, Coordinator
Vanderbilt University Medical Center
T-1218 Medical Center North
Nashville, TN 37232-2650
USA |
 |
|
Austria |
PHA Austria
/www.phaaustria.org |
|
International Scleroderma Network |
|
|
www.sclero.org |
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| National Organization for Rare Disorders, Inc. (NORD) |
|
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www.pcnet.com/~orphan/
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| Lung Rx, Inc. |
|
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www.lungrx.com |
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| National Organization for Rare Disorders, Inc. (NORD) |
|
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www.pcnet.com/~orphan/
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| Lung Rx, Inc. |
|
|
www.lungrx.com |
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| PHA Australia |
|
Australia |
jenniferlouisehodges@hotmail.com
North South Wales Support Group
www.phaaustralia.com.au/
carmel@phaaustralia.com.au |
|
| PH vzw Belgium |
Dutch
Française |
Belgium |
home.tiscali.be/yuc-johan.bastings/
www.ph-vzw.be
hendrik.ramaker@telenet.be
www.htap-belgique.be
htapbelgique@hotmail.com |
|
| Associacao Brasileira de Hipertensao Pulmonar - ABRAHP |
|
Brazil |
www.abrahp.org.br |
|
| Associacao Brasileira de Amigos e Familiares de Portadores de Hipertensao Arterial Pulmonar -ABRAF- |
|
Brazil |
www.respirareviver.org.br
Paula Menezes
paulafrmenezes@yahoo.com.br |
|
| Calgary Pulmonary Hypertension Support
Group |
|
Canada |
sharonproudfoot@yahoo.com |
Alberta |
| Edmonton Pulmonary Hypertension Support
Group |
|
|
havinfun667@hotmail.com |
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| University of British Columbia PH Society (UBCPHS) |
|
|
ania_2@hotmail.com |
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| Pulmonary Hypertension Society of Canada |
|
|
www.phscanada.com |
Canada - Ontario |
| PPH Quebec Support Group |
|
|
http://groups.msn.com/PPHQuebec |
Canada - Quebec |
| PHA - China |
|
China |
www.phachina.com
phachina@yahoo.com.cn |
|
| Sdruzeni Pacientu s Plicni Hypertenszi |
|
Czech Republic |
www.pph.cz
jansapavel@yahoo.com |
|
| HTAP (HyperTension Artérielle Pulmonaire) |
Française |
France |
www.htapfrance.com
secretariat@htapfrance.com |
|
| Pulmonal hypertonie e.v. - Germany |
|
Germany |
http://www.phev.de/
info@phev.de |
|
| PHA Greece |
|
Greece |
giannoulis_phagr@yahoo.gr barlas_phagr@yahoo.gr |
|
| Pulmonary Hypertension Association |
English |
Ireland |
www.mater.ie/pha-ireland/
sdoherty@mater.ie |
|
| PH Israel (Pulmonary Hypertension Israel) |
|
Israel |
http://www.phisrael.org.il/
ajberg@gmail.com
iris_tal@netvision.net.il |
|
| AMIP (Associazione Malati Ipertensione Polmonare) |
|
Italy |
www.assoamip.net/
mpproia@tiscalinet.it |
Rome |
| AIPI (Associazione Ipertensione Polmonare Italiana) |
|
Italy |
www.aipiitalia.org/
pisana.ferrari@aliceposta.it |
Milan |
| PH Latin Society -
Latin America (US reg.) |
|
USA |
phlatinsociety@hotmail.com
sociedadlatinahp.tripod.com/hp_latina.html |
|
| AMHAP (Asociacion Mexicana de Hipertension Arterial Pulmonar) |
|
Mexico |
http://hapmx.ods.org
www.hipertensionpulmonar.org.mx
hapmexico@hotmail.com |
|
| Mexican Pulmonary Arterial Hypertension
Association -MPAHA- |
|
Mexico |
www.asociacionmxhap.org
veronica@asociacionmxhap.org, tomaspulido@asociacionmxhap.org |
|
| |
|
Mexico |
hapmexico.blogspot.com/ |
|
|
|
Mexico |
www.hipertensionpulmonar.org.mx |
|
| PHA - Nederland |
|
The Netherlands |
www.pha-nl.com
info@pha-nl.nl |
|
| RESPIRAR - APHP |
Portuguese |
Portugal |
www.aphp.web.pt
maria.j.saraiva@clix.pt |
|
| South African PH Support Group |
English |
South Africa |
dravid@mweb.co.za |
|
| PHA SEA |
|
Southeast Asia |
smamub@yahoo.com.sgSoutheast
phasea_phasea@yahoo.com.sg |
|
| Asociación Nacional de Hipertension Pulmonar |
|
España |
www.hipertensionpulmonar.es
informacion@hipertensionpulmonar.es |
|
| Hjärt- och Lungsjukas Riksförbund |
|
Sweden |
www.hjart-lung.se |
|
| Reumatikerförbundet |
|
Sweden |
www.reumatikerforbundet.se |
|
| PHA Argentina |
|
Argentina |
ancycampelo@yahoo.com
armdiez@ffavaloro.org
alabro@ffavaloro.org |
|
| PPH - Selbstrhilfegruppe Schweiz - German |
|
|
http://lungenhochdruck.ch |
|
| HTAP Revivre |
Française |
|
monika.sorgemaitre@hcuge.ch |
|
| PHA Turkey |
|
Turkey |
kamilh@yahoo.com
hamiduk@ttnet.net.tr
www.PHA-Turkey.com |
|
| Scleroderma Foundation |
|
USA |
www.scleroderma.org |
|
| Fundacion de Hipertension Pulmonar de Venezuela (FUNDAHP) |
|
Venezuela |
respiremos@gmail.com
www.fundavhip.org |
|
| The Children PH (Pulmonary Hypertension) Research Foundation |
|
Austria |
www.phaaustria.org
office@phaaustria.org |
|
PPH Quebec
|
English
Française |
Canada |
groups.msn.com/PPHQuebec
lyndab64@hotmail.com |
Quebec |
| TiPAH |
Mandarin |
Taiwan |
www.tipah.idv.tw |
|
| HTAP Revivre |
|
Switzerland |
monika.sorgemaitre@hcuge.ch |
|
| Selbsthilfegruppe Schweiz |
German |
Switzerland |
www.lungenhochdruck.ch
bosshard@lungenhochdruck.ch |
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| American Thoracic Society (ATS) |
|
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www.thoracic.org/ |
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| European Respiratory Society (ERS) |
|
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www.ersnet.org/ |
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| European Society of Cardiology (ESC) |
|
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www.escardio.org/ |
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| The American College of Chest Physicians |
|
|
www.chestnet.org/ |
|
| American Heart Association |
|
|
www.americanheart.org/ |
|
| International Association for Adult
Congenital Cardiac Disease |
|
|
www.isaccd.org |
|
| International Society for Heart and Lung
Transplantation |
|
|
www.ishlt.org |
|
| The European League Against Rheumatism (EULAR) |
|
|
www.eular.org/ |
|
| American College of Rheumatology |
|
|
www.rheumatology.org/ |
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| HIV Medicine |
|
|
www.hivmedicine.com/ |
|
| Medscape: General
PAH Resource Center |
|
|
www.medscape.com/resource/pulmarthypertension |
|
| National Heart, Lung and Blood Institute -
NHLBL |
|
|
Tel: 301-592-8573
TTY: 240-629-3255
Fax: 301 592 8563
nhlbiinfo@nhlbi.nih.gov
http://www.nhlbi.nih.gov/ |
Office of the Director
Building 31, Room 5A52
31 Center Drive MSC 2486
Bethesda, MD 20892 |
| Pulmonary Hypertension Clinical Trials |
|
|
www.clinicaltrials.gov
www.nlm.nih.gov/contacts/custserv-email.html
clinicaltrials.gov/ |
|
| Medline Plus |
|
|
medlineplus.gov/ |
|
| Medline Plus Health Topics |
|
|
www.nlm.nih.gov/medlineplus/healthtopics.html |
|
| Medline Plus Drug Information |
|
|
www.nlm.nih.gov/medlineplus/druginformation.html |
|
| Medline Plus Medical Encyclopedia |
|
|
www.nlm.nih.gov/medlineplus/encyclopedia.html |
|
| Medline Plus Dictionary |
|
|
www.nlm.nih.gov/medlineplus/mplusdictionary.html |
|
| Medline Plus Directories: Providers and Facilities |
|
|
www.nlm.nih.gov/medlineplus/directories.html |
|
| Medline en espanol |
|
|
medlineplus.gov/spanish/ |
|
| National Center for Biotechnology Information
-NCBI- |
|
|
Tel: 301-496-2475
Fax: 301-480-9241
info@ncbi.nlm.nih.gov
http://www.ncbi.nlm.nih.gov/ |
Building 38A
Bethesda, MD 20894 |
| PubMed (archive of biomedical and life sciences journal literature) |
|
|
www.pubmedcentral.nih.gov/index.html |
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| TOXNET (toxicology, hazardous chemicals, and related areas)
Specialized Information Services |
|
|
Tel: 301- 496-1131 / 1-888-FINDNLM
Fax: 1-301-480-3537
tehip@teh.nlm.nih.gov
http://toxnet.nlm.nih.gov/ |
2 Democracy Plaza, Suite 510
6707 Democracy Blvd., MSC 5467
Bethesda, MD 20892-5467 |
| Interacción de medicamentos |
|
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health.discovery.com/encyclopedias/checker/checker.jsp |
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| Información audiovisual |
|
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yourtotalhealth.ivillage.com/pulmonary-hypertension.html |
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www.spvu.co.uk/ |
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